Tuesday, January 11, 2011

When your child is diagnosed with cancer, you have little to no time to look in to your options.  In almost every instance, your child jumps immediately in to the treatment plan laid out by COG, or Children’s Oncology Group, that has become the latest standard of care for your kid’s particular cancer.  You hope and pray that this is the right choice for your kid, fully aware that you are not the expert.  Sometimes, this is not the best path.  Sometimes you as the parent, know that there are other, perhaps better alternative paths for your little patient.  This is the path that Jenna’s parents are taking with her.

Jenna was diagnosed with Stage IV Neuroblastoma in April of 2008.  She followed COG protocol frontline treatment;  she still had active disease.  She went for treatment at Sloan-Kettering in NYC, a leading center for Neuroblastoma;  she still had active disease.  They started alternative treatments with a Naturopathic doctor, and although she still has active disease, she has enjoyed many months of routine family life, running in the sun, playing piano, camping, and starting Kindergarten at home.

This past December, Jenna presented with a new “bump” on her head.  It has been confirmed to be new growth neuroblastoma in the bone marrow of her skull, and so it’s time to turn up the fight.  Miraculously, Jenna continues to feel good and full of spunk.  Currently, the family is increasing Jenna's alternative care with appointments in Phoenix, Albuquerque, and Durango.  IV Vitamin C treatments have begun in Durango, along with many adjustments to her homeopathic and naturopathic medicines.  One hundred percent of the cost of these appointments and treatments are paid by the family.  One Hundred Percent.

We are honored to be able to help Jenna continue with her wonderful quality of life, while fighting back against this most evil disease.  Every dollar counts.  Every donation.  Give what you can, and then give a little more.



You can follow Jenna’s journey at CaringBridge / jennamiller / Welcome




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